First things first, the second opinion went far better. It lasted an hour. Dr. C did a bunch of tests and really spent time with C and us. C had to have his eyes dilated again and it got to be nap time so he wasn't happy at the end, but overall he did well. Dr. C said he saw NO SIGNS of a muscle or nerve palsy. This was wonderful news. He did see that he is farsighted. His left eye is greater than his right and that is why his left eye turns in more. Dr. C said that if it is 3 or less they normal grow out of it and don't need glasses later in life. C is at 3 for the left and 2 for the right. Otherwise his eyes look perfectly normal and healthy inside. Dr. C told me the other Dr has a rough bedside manner, but he is a good Dr. Whatever dude! Dr. C was very good and very thorough. I trust him and his opinion totally. He said we will look at C again in 6 months. Works for us.
Now, Rich & I have had this discussion on whether to tell the families or not. Part of me says yes so they know not to get in his face to try and get his attention. It will not work. Part of me says no because then we are going to get bombarded with calls all the time. That is what the other blog was for, so we didn't have to call after every appt and milestone. Everyone can read it on their own. I guess it is for selfish reasons I don't want to share the news with our families. I like my evenings to be peaceful and stress-free.
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Ok, on whether or not to tell here is my long-winded 2 cents. You're screwed either way. We didn't tell anyone about our multiple m/c or IF treatments until after Gabriel was born. We did this to avoid the constant calls as well. We wrote a letter to all our immediate family members letting them know our history after we were confident we'd be able to keep Gabriel. Now I'm finding out from my parents that my mom is upset that we didn't tell her all along because she could have helped, etc. So that's why I say you might be screwed either way. Sorry it's not a very positive opinion.
Could your private blog continue to save you phone calls? You could post about his eyes there and save everyone the trouble of bugging you? Maybe start with a phone call to your parents and then tell them to keep an eye on the blog for updates? I don't know if that would work or not, but it is an idea.
I think you should post about the eyes on Cam's blog. Be very detailed about the final result. Not necessarily about seeking so many opinions from doctors. Just cut to the chase about the problem, describe exactly what it is, what Cam's problem spots seem to be, and what the next step and/or final result is. The more you describe on the blog in a simple well-understood manner, the less you'll have to explain. You could then even post about how family should treat him for now as far as getting too close to his face, etc. Explain that it's nothing to get worked up about, etc and that you found a wonderful doctor who you trust to provide the best care for Cam. They are going to find out eventually anyway. Might as well just get it out now and deal with it. I'm sure grandparents will call regardless so just suck it up and get the drama over with. You should find out family history stuff anyway in case someone had similar difficulty with vision.
And also, I have learned about many medical things from friends discussing their lives and struggles. You posting about Cam may help another family down the road. We were freaking out about Meadow having blocked tear ducts initially. Then, find out it's very common and one friend had to have some kind of tubes placed underneath both of his children's eyes. We were panicked for no reason and felt good to know that we were the only ones.
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